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FeCt, Berlin offspring study 2010 and 2013-2019
It emerged from the previous FeCt studies that several former patients were afraid that their own children might develop cancer. Studies to date in the USA and Scandinavia have not shown any increase in the risk of malignant disease developing in the children of former pediatric oncology patients. This offspring study is now intended to provide a comprehensive view of the state of health in the offspring of former pediatric oncology patients in the German-speaking countries and elsewhere in Europe, using a questionnaire survey and supplementary interview.
In preparation for this, we carried out a pilot project in Berlin in 2010, in collaboration with the study on 'The Health of Children and Adolescents in Germany (KiGGS)', which is being conducted by the Robert Koch Institute.
The aim of the offspring study is to provide answers to the following research questions:
1. Are the offspring of pediatric oncology patients just as healthy as other children? Questions about the children's diseases and about their wellbeing are to be asked here.
2. How concerned are former pediatric oncology patients about their children? This is to be answered by questions about the parents' health behavior and use of medical services for their children.
3. How healthily do children of former pediatric oncology patients grow up? Questions about the children's health behavior and living conditions are to be asked here.
In addition, the study will also investigate any association between the children's own health status and data on the illness and treatment in the formerly diseased parent. Some of these data are already available from the FeCt study.
Here you ca read about the first results of the offspring study 2010: http://www.ncbi.nlm.nih.gov/pubmed/26600178
If you are interested in the questionnaires, you may downlaod them here: